A Glimpse At What It Is Like Raising A Child With Cerebral Palsy, Severe Intractable Epilepsy And Cortical Visual Impairment

I recently reached out to Lisa, little Hunter’s mom, and asked her if I could please share their story. I have been following this brave little boy’s life on Facebook since the beginning of the year… I have cried for them with every setback and leaped with joy at every triumph. See, Hunter is a very special little boy – not only is he strikingly beautiful, but he also suffers from Cerebral Palsy, severe Intractable Epilepsy and Cortical Visual Impairment after damage to the brain was picked up In Utero… he is only 18 months old.

A Glimpse At What It Is Like Raising A Child With Cerebral Palsy, Severe Intractable Epilepsy And Cortical Visual Impairment

I admire his parents, they have remained positive throughout Hunters’ diagnosis and continue to do so every day – reading the updates on the Facebook page you can see for yourself, they are taking this head on! I have asked Lisa to tell us her story, to tell us what it is really like raising a child with Cerebral Palsy, Severe Intractable Epilepsy And Cortical Visual Impairment. This is their story as told by Lisa, his brave mom, a true inspiration…

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Our story begins when we first found out about Hunter’s bleed on the brain when I was still pregnant. At 32 weeks our gynae saw something on his brain in a routine ultrasound and we were immediately sent for a further 4D scan – we had been for an earlier 4D scan prior to this but everything was still perfect at that point… we were shattered by this news and did not know what to expect, we just kept praying for a false alarm but somehow the decrease in movement in the few weeks leading up to the scan made me incredibly anxious. The scan revealed enlarged ventricles and a bleed on the brain in a few areas. This could not be explained by any expert and the cause remains unknown, but we remained hopeful as other than the enlarged ventricles the rest of brain seemed to look fine. We were told that it is difficult to make any definite conclusions as ultrasound is not able do view areas deep in the brain.

We did the only thing we could do… Continue reading

A Real-Life Love Story…

Today I am going to tell you a real-life love story – this amazing story belongs to Calvin (Cole’s uncle) and Didge, his beautiful wife. These two people hold a very special place in my heart – not only because they are family, but because they are amazing human beings with so much love and compassion for others. They truly deserve all the happiness in the world, and this just goes to prove… good things happen to good people.

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Calvin and Didge met in 1966 when they were just 15-years old in Rhodesia through a mutual friend. They saw each other during the school holidays despite the fact that Didge lived all the way out in the country in Mazoe and Calvin in Salisbury. Calvin would ride out with his friend, Jack, on a motorbike to see Didge and watch their friends bands play. (Keep in mind, this was before cellphones!)

Didge left school a couple of years later and moved to Salisbury having found work in the city and was staying in a youth hostel. She walked to work every day, little did she know that Calvin lived just down the road from her in Rhodes Avenue. One morning they bumped into each other on the corner, they happened to be going in the same direction on their way to work. This became a regular thing and as they had always fancied each other and had been friends, Calvin mustered up the courage to ask Didge out soon after. From there on they were inseparable, but of course the inevitable happened and Calvin had to leave to do a long stint in the army. Calvin was conscripted into the army at Bulawayo, Llewellyn Barracks. It was compulsory for all guys to join the army back then. He was away for 18 months and Didge would travel to see him from Salisbury whenever she had a break. Once Calvin finished his initial training, he was posted out to the Bush and mostly did his time in the Kariba area where Didge would drive out to see him.

Caffeine And Fairydust A Real-Life Love Story... Continue reading

The Artificial Road To a Miracle Baby – An Inspiring Journey

I heard about Kerry and Michelle’s story through a mutual friend. Something about their story broke my heart and warmed it at the same time. I think sometimes we take for granted how easy the road to pregnancy for some of us are, without sparing a thought for those around us who might not be so lucky. 

Kerry and Michelle are a wonderful couple from Cape Town going through a journey of a lifetime and I hope we can all spare them a thought and send amazing positive vibes their way. I find their strength and positivity so inspiring. This is their story as told by Kerry…

The Artificial Road To a Miracle Baby - An Inspiring Journey

In September 2013 we decided that we would start trying for our first baby. We got started right away deciding that Kerry would be the one to carry the baby and we would find an anonymous donor at the Cape Fertility Clinic. We started off with saving for the procedure and taking all of the required vitamins, healthy dieting and no drinking or smoking to get Kerry’s body in tip top shape. We managed to get our first appointment with Dr Heylen at the Cape Fertility Clinic in late January 2014 after being bumped up the waiting list. The initial check up was perfect and we were all set for our first Artificial Insemination (AI) in early February. Unfortunately for the first time in her life, probably due to a lot of stress (we had a car accident that week), Kerry did not ovulate and the procedure was cancelled.

We started on Clomid which could only be found at Wynberg Pharmacy. It made Kerry very moody and caused terrible hot flushes- we were optimistic that all would go well the second time around. After four failed inseminations – all with two to three beautiful follicles and a perfect uterus lining, Dr Heylen was not happy and suggested surgery to see what was happening… The surgery (Laparoscopy & Hysteroscopy) was scheduled at Kingsbury Hospital in June 2014. Continue reading