A Glimpse At What It Is Like Raising A Child With Cerebral Palsy, Severe Intractable Epilepsy And Cortical Visual Impairment

I recently reached out to Lisa, little Hunter’s mom, and asked her if I could please share their story. I have been following this brave little boy’s life on Facebook since the beginning of the year… I have cried for them with every setback and leaped with joy at every triumph. See, Hunter is a very special little boy – not only is he strikingly beautiful, but he also suffers from Cerebral Palsy, severe Intractable Epilepsy and Cortical Visual Impairment after damage to the brain was picked up In Utero… he is only 18 months old.

A Glimpse At What It Is Like Raising A Child With Cerebral Palsy, Severe Intractable Epilepsy And Cortical Visual Impairment

I admire his parents, they have remained positive throughout Hunters’ diagnosis and continue to do so every day – reading the updates on the Facebook page you can see for yourself, they are taking this head on! I have asked Lisa to tell us her story, to tell us what it is really like raising a child with Cerebral Palsy, Severe Intractable Epilepsy And Cortical Visual Impairment. This is their story as told by Lisa, his brave mom, a true inspiration…

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Our story begins when we first found out about Hunter’s bleed on the brain when I was still pregnant. At 32 weeks our gynae saw something on his brain in a routine ultrasound and we were immediately sent for a further 4D scan – we had been for an earlier 4D scan prior to this but everything was still perfect at that point… we were shattered by this news and did not know what to expect, we just kept praying for a false alarm but somehow the decrease in movement in the few weeks leading up to the scan made me incredibly anxious. The scan revealed enlarged ventricles and a bleed on the brain in a few areas. This could not be explained by any expert and the cause remains unknown, but we remained hopeful as other than the enlarged ventricles the rest of brain seemed to look fine. We were told that it is difficult to make any definite conclusions as ultrasound is not able do view areas deep in the brain.

We did the only thing we could do… Continue reading
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