A Glimpse At What It Is Like Raising A Child With Cerebral Palsy, Severe Intractable Epilepsy And Cortical Visual Impairment

I recently reached out to Lisa, little Hunter’s mom, and asked her if I could please share their story. I have been following this brave little boy’s life on Facebook since the beginning of the year… I have cried for them with every setback and leaped with joy at every triumph. See, Hunter is a very special little boy – not only is he strikingly beautiful, but he also suffers from Cerebral Palsy, severe Intractable Epilepsy and Cortical Visual Impairment after damage to the brain was picked up In Utero… he is only 18 months old.

A Glimpse At What It Is Like Raising A Child With Cerebral Palsy, Severe Intractable Epilepsy And Cortical Visual Impairment

I admire his parents, they have remained positive throughout Hunters’ diagnosis and continue to do so every day – reading the updates on the Facebook page you can see for yourself, they are taking this head on! I have asked Lisa to tell us her story, to tell us what it is really like raising a child with Cerebral Palsy, Severe Intractable Epilepsy And Cortical Visual Impairment. This is their story as told by Lisa, his brave mom, a true inspiration…

pagebreak1

Our story begins when we first found out about Hunter’s bleed on the brain when I was still pregnant. At 32 weeks our gynae saw something on his brain in a routine ultrasound and we were immediately sent for a further 4D scan – we had been for an earlier 4D scan prior to this but everything was still perfect at that point… we were shattered by this news and did not know what to expect, we just kept praying for a false alarm but somehow the decrease in movement in the few weeks leading up to the scan made me incredibly anxious. The scan revealed enlarged ventricles and a bleed on the brain in a few areas. This could not be explained by any expert and the cause remains unknown, but we remained hopeful as other than the enlarged ventricles the rest of brain seemed to look fine. We were told that it is difficult to make any definite conclusions as ultrasound is not able do view areas deep in the brain.

We did the only thing we could do… Continue reading

What to expect when your wife is expecting. 

My husband wrote this post – What To Expect When Your Wife Is Expecting – rather interesting to see it from a man’s perspective! Definitely share this with dad’s to be, he is pretty spot on!

Dude Revude

I was washing my car one Saturday morning when my wife brought me a hotdog and a coke.  “I’m pregnant.” There was about 15 seconds of silence between us which was actually louder than its sounds. We had been engaged for a couple months and I think she was waiting for me to freak out and rush off to the pub. But I didn’t. I was genuinely happy. I was gonna be a dad!

Looking back on our pregnancy (I say “our pregnancy” because you are both pregnant! Don’t fool yourself.) I wish I was told a few things about what to expect from a pregnant woman. We all know the stereotypes of a pregnant lady but they are always told to us in a light-hearted “it’s-not-the-kind-of-thing-you-need-to-prepare-for”  kind of way. For new dads, like I was, it’s nothing short of terrifying.

Firstly, always be available. Your wife is growing your…

View original post 312 more words

Having A Baby? Clicks PaedIQ Baby Bootcamp 2015 Is For You! {Giveaway Closed}

{Sponsored Post}

Local retailer Clicks and South Africa’s first paediatric 24/7 hotline Paed-IQ, have joined hands for the third annual national parenting workshop.

The Clicks PaedIQ Baby Bootcamp 2015 is aimed at new and expectant parents, providing them with access to holistic, baby-related information in time for their big day. The bootcamps will kick off in Cape Town on 28 February 2015, Johannesburg on 28 March and Port Elizabeth on 23 May 2015.  This year the roadshow includes Port Elizabeth and Bloemfontein.

Baby Bootcamp Cape Town

According to Paediatrician Dr Iqbal Karbanee of BabyLine, there is a huge need for a workshop such as this amongst new parents. “In the past we targeted Cape Town, Johannesburg, Durban and Pretoria, however we always get requests from parents in other parts of the country for workshops and now we are bringing the experience to them too.”

Speakers will include Paediatricians, Midwives, Psychologists, Dieticians and Biokineticists. All aimed at helping Moms and Dads prepare for the arrival of their little miracle. Come join the fun! Lots of giveaways, goodie bags and prizes.

The cost per entry is R180 and delegates can expect an amazing goodie bag filled with great products as well as entry into a lucky draw for incredible hampers.

Refreshments and snacks will be served at each event, so please visit CLICK HERE to book your seat online.

You can also like the Facebook Page and Follow them on Twitter

You can also join the Facebook Event Page here.

WANT TO WIN 2x TICKETS?

Click here to be directed to Facebook to enter the competition…

xox

Maz

3af43ff19812c67356d8af08d1296e0e

Baby Bump Update – 36 weeks + Birth!

Baby Bump Update - 36 weeks + Birth! So we’ve reached 36 weeks!!! Amazing how time is flying. Everything was ready, we were all just waiting… We even had the Christmas tree and all the presents sorted out! Coincidently, I also finished all of my UIF paperwork the day before and had a lunch date with Mikayla earlier in the day (this was something I was planning to do the day before my scheduled c-section and was very important to me). Knox must have sensed this as on 4 December 2015 at 7:30pm my contractions started and I went into labour…

It started feeling like Braxton Hicks, I have been experiencing quite a lot of these in my third trimester, but something was different. The contractions seemed to start in my lower back and pulled its way around my tummy like a belt – it wasn’t painful though so I did not worry too much. They became more and more frequent, and they didn’t go away… I usually get about four big semi-painful Braxton Hicks and then they disappear – not this time. I counted eight contractions in 40 minutes spaced roughly 3 minutes apart and lasting for about a minute each. These were too consistent so I phoned the Maternity Ward at Kingsbury Hospital. The sister on call advised me that it was a little strange that they weren’t very painful, and to take a shower, drink loads of water and lie on my side for about an hour – if they didn’t disappear before then I was to come in for a check-up. I did the above mentioned, but waited an extra hour – I felt so embarrassed – I didn’t want to go in and then it was nothing! (I’ve already been to the Maternity Ward twice before – false alarms). At 10:00pm the contractions where about 1:30 minutes apart lasting 40 seconds each and they were getting painful, very, very painful…. There was no denying it – it was time! We dropped Mikayla off at the in-laws and made our way through to the hospital where I was placed on a fetal heartbeat and contraction monitor.

Baby Bump Update - 36 weeks + Birth!

Baby Bump Update - 36 weeks + Birth!
The sister confirmed that I was indeed in labour, I was admitted for the night and Dr. Jansen (a.k.a Rockstar Gynea) was notified. She was concerned about delivering the baby at exactly 36 weeks – she was worried that his lungs would not be fully mature enough. She had the sister give me a Morphine injection in a bid to try stop the labour – it didn’t work – it did not even take the pain away enough for me to be able to sleep. I was also given a steroid injection to help mature his lungs just in case.
The contractions remained frequent and intense. I was about 1cm dilated and my cervix was paper thin. By 8:00am the next morning Dr. Jansen came around and had me placed on a drip as a second attempt to stop labour – once again it did not work and after about 15 hours of labour in total, I was rolled into theatre and they performed a c-section.

Baby Bump Update - 36 weeks + Birth!
Cole was absolutely amazing through all of this… He is the best husband a girl could ever ask for. He held my hand, kissed me, distracted me through every injection (I have a huge fear of needles), he was just amazing. Another very special, amazing part was that Cole’s oldest and dearest friends’ wife, Manna, came in to assist Dr. Jansen in delivering our baby. This is seriously the nicest, sweetest person you will ever meet – it was so great having her there, she really made me feel relaxed and put my mind at ease. It was very special.

Knox was born at 10:30am on 5 December 2014 and when he gave his first cry… It was the most beautiful sound I have ever heard in my life. He weighs 2.97kg and is 50cm tall – not bad for being four weeks early. I got to hold him for less than a minute as he was having trouble breathing – as predicted.

Baby Bump Update - 36 weeks + Birth! He had some fluid on his lungs so they let us take a quick family photo before taking him through to the NICU unit – Cole went with and followed him the entire day to put my mind at ease!

Baby Bump Update - 36 weeks + Birth!
I have been in bed all day recovering from the c-section and getting feeling back in to my legs after the epidural, I will only be able to see my little boy again tomorrow after all my tubes, drips, etc. have been removed and I’m allowed to walk around. I cannot describe how heartbreaking it is not to be able to hold him.. Not to be able to see him is just… I don’t know, it is killing me. Cole kept bringing me photos and videos of him so that helped a little bit.

Baby Bump Update - 36 weeks + Birth!

Continue reading

I Am Just So Tired….

Sometimes I complain about motherhood and every time I do, somebody somewhere somehow gives me the same speech…

  • Enjoy it before it’s over.
  • Live in the now.
  • It’s all worth it.
  • EMBRACE IT.

Believe me, I know all these things… I am just so damn tired.

I am 36 weeks pregnant in the heat of summer, I have a toddler that still does not always sleep through the night and up until last week I had a full time job …I am just so tired.

You lose a lot of things when you have kids, including your mind. (Yes, I know, you gain a lot too – like a new perspective and a bigger heart and tons cuts on your feet from stepping on LEGO pieces), but becoming a parent forces you to shed much of your old lifestyle to accommodate your new one. I used to sleep so much… I loved sleep… I could easily sleep till 1 pm in the afternoon if I wanted to. One of my favourite things when I used to go visit my parents was sleeping on the couch while my dad watched cricket, oh how I miss those beautiful sweet dreaming moments. Even just the ability to have a nap whenever you felt like it… do people even still do that?

One of the earliest pieces of advice I got when I was pregnant the first time around was to catch up on sleep before Mikayla was born. It’s both incredibly good advice and terribly stupid advice. Stupid because there’s no way to “catch-up” on sleep before you lose it – you can’t bank sleep. And good because once you have a kid, as in DAY ONE, the amount of sleep you’ll get for the rest of your life begins to diminish and never stops. Continue reading

Maternity Shoot – 30 Weeks

Even though I am a typical Leo who loves attention, I really do not love being in the spotlight or having photo’s taken of me! There is something very special about Kathrin from Kathrin Gallova Photography. She makes you feel comfortable and you just cannot help but love her. She was the photographer for my engagement shoot, my wedding, Mikayla’s baby shoot and now my maternity shoot at 30 weeks pregnant with little Knox. This shoot was so special as I got to share it with my daughter, who I truly believe is the most beautiful human being that ever existed!

I absolutely love her photo’s!

Kathrin, I cannot thank you enough for capturing all these special memories for my family, you are a wonderful person with so much talent!

See for yourself…

Maternity Shoot - 30 WeeksMaternity Shoot - 30 WeeksMaternity Shoot - 30 Weeks Continue reading